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List of Support Groups by State

The ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world.  If you know of an existing IC support group that is not on this list, please ask the leader to provide us with the following information:

  • Location (city and state)
  • Name of group
  • Meeting schedules and place (day and time)
  • Contact information (email plus phone number and best time to call)

To protect the validity of this information, please email us at icamail@ichelp.org. We will gladly add information about your support group to our listing.

Choose State or Scroll to View

A   B   C   D   E   F   G   H   I   J   K   L   M   N   O   P   Q   R   S   T    U   V   W   X   Y   Z 

STATE, CITY

SUPPORT GROUP

MEETING SCHEDULE & LOCATION

CONTACT

Alabama,

   Birmingham

Ongoing IC/pelvic pain support group

WHERE: 190 Lime Quarry Road, Suite 108, Madison

Melanie J. Barton, LCSW, EdD
bartmelly@hotmail.com

256-541-0405
 

190 Lime Quarry Road

Suite 108

Madison, AL 35758

 

Arizona

   Tucson

Tucson IC Support Group

 

WHEN: Every other month on the fourth Sunday at 2 PM.

 

WHERE: University Medical Center,1501 North Campbell Avenue, Tucson.

 

Please email or call for additional information.

 

Marsha Crawford
tuazmom@gmail.com

520-751-9928
 

Arizona,

   Phoenix

Phoenix IC Support Group

WHEN: Second Sunday of each month at 2 PM

 

WHERE: John C. Lincoln Hospital-North Mountain at 250 E. Dunlap Avenue.

 

E-mail or telephone for additional information about the support group meetings.

For our September 13th meeting, we have a speaker scheduled:
Elizabeth A. Kornfield, M.D.
Registration is strongly encouraged due to limited seating.

 

Barbara DiGilio, Co-Leader
azic_help@cox.net

602-441-3644          

 

Carolyn White-Krueger, Co-Leader
carolyn.whitekrueger@gmail.com

602-469-2766

Arizona,

   Sierra Vista

IC Support Group

Contact Carol for information on location, date, and time.

 

Carol
520-458-1883

Arkansas,          

   West Plains,  MO

MoArk IC

 

Networking IC/chronic bladder pain patients and medical professionals throughout Missouri and Arkansas.

 

Contact Shelly Matthewson for more information.

 

See www.moarkic.com for more information.

 

Shelly Matthewson
Romans828@mozarks.com

417-255-1900
 

P.O. Box 1672
West Plains, MO 65775

California,

   Glendora

Citrus Valley IC Support Group

WHEN: Fourth Tuesday of every month, 6:30 PM.

 

WHERE: Foothill Presbyterian Hospital in Glendora.

 

See www.icaction.com for more information.

 

Dr. Edward Davis
La38ft@aol.com

626-914-3921
 

California,

   Los Angeles

Interstitial Cystitis Alternative Medical Association


 

Group meets once a month.  Call for details.

Jeanne Townsend

patient-outreach@icama.org
310-231-3300
 

2001 S. Barrington Ave #115,

Los Angeles CA

 

California,

   Laguna Hills

Central Orange County IC Group

WHEN: Third Sunday of the month (except June and holidays) about 2:00 PM to 4:00 PM.

 

Please contact Jean Gardner for more information.

Jean Gardner
jncgardner@aol.com
714
544-2050 (evenings)
 
Lisa Kanouse
562
694-4601 (evenings)

 

California

   Monterey

Pelvic Pain & Resource Sharing Group

 

For women with pelvic pain and dysfunction (IC, endometriosis, vulvodynia, etc.)

 

WHEN: First Saturday of each month from 10 AM to noon.

 

WHERE: 157 Sargent Ct., Monterey, CA 93940.

 

Call or email to check meeting dates.

Julie Tanaka, PT

therapyforlife@comcast.net
831-238-2357
 

California

   San Diego

San Diego IC Support Group

 

Group Sponsor: Lowell Parsons, MD

 

 

 

 

 

 

 

 

 

 

WHEN: Group meetings are held from 1:30 to 3:00 pm on the first Sunday of February, April, June, October & December.

 

WHERE: Thornton Hospital (part of UCSD Medical Center) in the Coral Conference Room (located on the first floor near the cafeteria).

 

DIRECTIONS: Thornton Hospital is at 9300 Campus Point Drive, La Jolla, CA 92037. The hospital phone number is 858-657-7000 and the phone number of the Coral Conference Room is 858-657-6644.

 

Please check out our group website at:
http://health.groups.yahoo.com/group/ICSanDiego

 

Cathy Salazar-Martiarena

(858) 672-2249 and Terry Ward (619) 266-2701

California

   San Luis Obispo

Central Coast California Support Group

 

WHEN: Quarterly.  

 

WHERE: Conference room (main floor) at French Hospital located at, 1911 Johnson Avenue, San Luis Obispo.

                                    

Ann LaRose
thewildwildwest@yahoo.com

805-464-0564
 

Colorada

   Denver

 

 

WHEN: Second Wednesday of each month at 6:00 PM

WHERE: The Urology Center of Colorado, 2777 Mile High Stadium Circle, third floor conference room

Please call 303-825-8822 to confirm

2009 meetings: January 14 (The Role of Supplements in IC Treatment), February 11 (Discussion Group), March 11 (Surgical Intervention in IC), April 8 (Discussion Group), May 13 (Dietary Recommendations for IC), June 7(Survivorship Day Picnic, 1:00 to 3:00 PM)

 

Urology Center of Colorado

2777 Mile High Stadium

303-825-8822
 

Connecticut

   New London

 

New London Area IC Support Group

 

Patients, family members and friends are welcome to attend. 

 

WHEN: Third Wednesday of the month from 7:00 to 8:30 PM

 

WHERE: Lawrence & Memorial Hospital, 365 Montauk Avenue, New London, CT.

 

DIRECTIONS: When you arrive, go to the main entrance & ask for the room assignment at the information desk (room assignments change according to hospital needs, sometimes at the last minute, so check each time). New members may call the hospital for directions at 860-442-0711.

 

Alyce Hemstreet
alycehemstreet@cs.com

860-442-0711, ext. 5071

(M- F, 8:00 AM to 5:00 PM)

860-739-7504 (after 7:00 PM)

 Connecticut

   New Haven

Yale Medical Group

WHEN:  Second Tuesday of every month.

 

Please call for information.

 

Cherrilyn Richmond, RN
203-785-6927

Florida,  

  West/Central & England

 

 Patient Advocate

Provides phone and email support, IC information, and healthcare provider referrals.

 

 

Iliana C. Brockman
Iliana@icrelief.com

Florida,

   Jacksonville

 

 

Call or email for support.

 

Patricia Jones
PMsings2@bellsouth.net

904-269-8030

 

Florida

   Panama City

Panama City Interstitial Cystitis Support Group

 

WHEN: Quarterly, Wednesdays from 6:30 PM to 8:00 PM -- 2009 meeting dates: January 14, April 8, July 8, and October 14.

 

WHERE: Panama City Urological Center, 80 Doctors Drive, Panama City. 

 

Pat Flebotte
patakashorty@hotmail.com

850-233-7734
 


 

Florida

   Saint Augustine

 Old City IC Support

WHERE: 740 Charmwood Drive, Saint Augustine.

 

DIRECTIONS:  Call for directions.
 


Marla Ray
mmartoglio@aol.com

501-2959

Florida

   Fort Lauderdale

 

South Florida

 

WHERE: Center for Independent Living of Broward, 4800 North State Road 7, Building F, Suite 102, Fort Lauderdale, FL 33319.

 

Marcia Gordon
MGordon751@aol.com

954-752-4746

Florida

   Vero Beach

The Vero Beach Interstitial Cystitis Support Group

WHEN: Second Saturday of each month, from 2:00 PM until approximately 4:00 PM. No June meeting.  Next meeting: July 11.

 

WHERE: First Church of God, 1105 58th Avenue, Vero Beach, FL 32966

Email or phone Michelle and make sure you reference 'IC.'

 

Michelle Lindsey
linzeyfive@yahoo.com

772-532-8971

Georgia

   Cartersville

Metro Atlanta Interstitial Cystitis Support Group

WHEN: Third Thursday of every other month at 6:30PM

 

WHERE: Classroom of the Emory Cartersville Medical Center in Cartersville.

 

Jeffrey Proctor, M.D.
770-607-1893

Georgia

   Savannah

 

WHEN:  Quarterly, call for dates and times.

 

WHERE: Chandler Hospital.

 

Jolene Seese
912-352-8632

Hawaii

   Maui

 Maui Support Group

 Contact Suzzana.

Suzzana Goodwin
suzzana@hawaiiantel.net

808-572-7157

Idaho

   Coeurd'alene

 

North Idaho Interstitial Cystitis Support Group

 

WHEN: Second Saturday of every month scheduled from 1:00 P.M. to 3:00 P.M. Email to confirm meeting dates.

WHERE: Event Room # KMC2 at the
Kootenia Medical Center, 2003 Lincoln Way, Coeurd'alene.

DIRECTIONS:
208-666-2000

 

Katrina Brodwater
Katrina_brodwater@yahoo.com

Phone number available by request through e-mail

 

115 E. Anton #30
Coeurd'alene,
Idaho 83815

 

Illinois

   Dupage

 

Dupage Interstitial Cystitis Support Group

 

Contact Jean for more meeting information



 

Jean 

jboak@sbcglobal.net

630-668-9800

 

Illinois

   Mount Vernon

 

South Central Illinois IC Support Group

 

WHERE: St Mary's Hospital, Classroom #2, 605 N. 12th Street, Mt Vernon.

 

Refreshments served.

 

Angie
sci_ic_group@yahoo.com

618-925-4017 

Illinois

   Park Ridge

 

Northwest Suburban Interstitial Cystitis Support Group of Illinois

 

WHEN: Second Wednesday of each month at 7:00 PM.

 

WHERE: Lutheran General Hospital, 10th Floor of Main Hospital - Room 1064, 1775 Dempster Street,Park Ridge.

 

Barb Zarnikow
Bzarnikow@aol.com

847-478-9614
 

Indiana

   Evansville

IC Support Group of Evansville

 

Contact group coordinators for information on location, date, and time.

Gerald Roach and             

Angela Roach R.N.
ICSupportofIN@aol.com

812-205-6798 (days)
812-464-0068 (after
6:00 PM)
 

Iowa

   Iowa City

 

I-SEE

 

WHEN: Last Monday of every month.

WHERE:
Iowa City Public Library, 123 Linn Street, Iowa City.

 

Beth Krayenhagen
beth-krayenhagen@uiowa.edu

319-471-1745

Kansas

   Kansas City

Greater Kansas City IC Support Group


 

WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.

WHERE: Rieke Auditorium,
Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.

 

DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.

 

Gerri Rathbun
glr626@aol.com

816-252-2566 

Louisiana,  

   Lake Charles

 

 

Call or e-mail for schedule of meeting dates, times and general information. 

Jacqueline Daigle
kirth@centurytel.net

337-588-4586 (after 6:00 PM)

 

Louisiana

   Shreveport

 

IC Support Group

Group sponsor: Regional Urology LLC

 

Family and friends welcome.

 

WHEN: Third Thursday of the month (this date may fluctuate slightly according to speaker availability) on an every 3 month basis. IC friendly meal served.

 

WHERE: Office lobby at 255 Bert Kouns, Shreveport.

 


Malinda Whitfield, APRN, FNP-BC
mwhitfield@regionalurology.com
318-683-0411 ext 175 

Maine

   Bangor

 

Bangor Maine Area IC Support Group

WHEN: Second Monday of every month from 6:00 PM to 8:00 PM.

 

WHERE: Eastern Maine Medical Center, second floor cafeteria area.

 

Brenda Hanson
bmozartktty@aol.com

207-825-4457


 

Maryland

   DC metro area

Baltimore/DC IC Support Group

WHEN: Sunday, March 7, 2010
Sunday, June 6, 2010
Sunday, September 12, 2010
Sunday, November 14, 2010  

 

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

 

Tina Nachodsky
Tina@BaltoDCicSupport.com 

 

P.O. Box 285
Bel
Air, MD 21014

 

Maryland,

 Baltimore

 

Baltimore Area IC Patient Support Group

 

WHERE: Chesapeake Urology, Suite 450, Owings Mills, MD

 

Sonya Hull
treasurepeace2@msn.com

240-280-2456
 

Michigan,

   Grand Rapids

 

Female Pelvic Medicine IC Support Group

 

WHEN: April 23, July 23, October 22 2009
6:00 pm

 

WHERE: Female Pelvic Medicine & Urogynecology
(@ Women’s Health Center of West MI)
555 Mid Towne St. NE Suite 450
Grand Rapids, MI 49503


 

Suzette
dietitian@grwh.org
or 616-588-1800

Anna
arogers@grwh.org
or 616-588-1139

 

Michigan,

   Port Huron

 

Blue Water IC Support Group

 

WHEN: First Wednesday of every other month from 7:00 PM to 9:00 PM.

 

WHERE: Meeting room at Mercy Hospital.


 

Sherry Campbell
anitakure@comcast.net

810-320-0224

 

Michigan

   Royal Oak

 

ICMICH

 

WHEN: Third Thursday of the month, except July and December.

 

WHERE: First floor dining room of the Administration Building (on the campus of Beaumont Hospital), Royal Oak.

 

Jane Page
janepage@sbcglobal.net

248-549-8445

 

Michigan

   Sagninaw

Midwest Support Group for Interstitial Cystitis/ Chronic Pelvic Pain

 

WHEN: Quarterly.

 

WHERE: Saginaw Center for Female Urology and Incontinence, 1740 Midland Road, Sagninaw.

Our next meeting will be on April 8th at 6:30 pm. Jennifer Knight a Physical Therapist will talk about therapy for IC patients and also share some simple exercises you can do at home.

Laura Hintz, Nurse Practitioner
989-799-4840

Angie Powers                           
810-694-3813 (home)
248-321-5692 (cell)

Michigan,

   Muskegon

 

Muskegon IC Support Group

 

WHEN: Twice yearly in the spring and fall.

WHERE: Mercy Health Partners-Lakes Campus
6401 Prairie,
Suite 2300, Muskegon, MI.

 

Leslie S. Wooldridge, GNP-BC
lwooldri@hackley-health.org

231-727-7944

 

Michigan,  

   Canton

 

Southeast Michigan IC Support Group

 

C0-sponsors: Henry Ford and University of Michigan Hospitals

 

WHEN: Call for meeting dates and times.

 

WHERE: Henry Ford Medical Center, 6100 Haggerty Road, Canton.

 

 

Louise McPhee
734-464-2965


 

Michigan

   St. Joseph

 

St. Joseph

 

WHEN: Third Thursday of the month at 7:00 PM, September through May.

 

WHERE: Room #1, Upton Center in Lakeland Hospital in St. Joseph, Michigan.

Marcia Koehler
ewkoe@peoplepc.com

269-429-8860
 

Chris Volk
chester468@hotmail.com

269-849-2165
 

Michigan

   Traverse City

Traverse City IC Support Group

 

Please call for phone support and information.

 

Jeri Hansen
231-932-7300

Mississippi

   Southern region

IC Support Group of South MS

Feel free to contact Bridget for support.

Bridget Pigeon
southms_ic@yahoo.com

601-796-9933 (M-F after 5pm, or leave a message)
  

Missouri,  

   Kansas City, KS

 

Greater Kansas City IC Support Group

 

WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.

WHERE: Rieke Auditorium,
Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.

 

DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.

 

Gerri Rathbun
glr626@aol.com

816-252-2566

Missouri

   St. Louis

 

W. I. S. H.


Washington University Interstitial Cystitis Support and Health Education Group

 

WHEN: Third Thursday of every other month. Refreshments served at 6:30 PM; presentations start at 7:00 PM.

 

Upcoming meetings: Thursday, November 19
6:30 Social, 7 P.m. Meeting
Barnes West Hospital--Cafeteria
Dr. Henry Lai, MD; W.U.
"MAPP Research on IC"
How you can participate to understand IC.

 

WHERE: Barnes-Jewish Hospital West (Cafeteria Private Dining Room), 12634 Olive Boulevard, Saint Louis

 

Bonnie Hana
314-394-0040

Missouri,  

   West Plains

 

MoArk IC

 

Networking IC and chronic bladder pain patients and medical professionals throughout Missouri and Arkansas!

 

Contact Shelly Matthewson for more information.

 

See www.moarkic.com for more information.

 

Shelly Matthewson
Romans828@mozarks.com

417-255-1900


P.O. Box 1672
West Plains, MO 65775

 

Montana

   Kalispell

 

Flathead Valley Support Group

Contact Alyson for meeting location and times.


 

 

Alyson Gregory
alysongreg@yahoo.com

406-212-2488 (anytime)

Montana

   Statewide

 

Please phone or email for support or information.

Dianne Armstrong, RN
montanapets@earthlink.net

406-443-6488
 

Nevada

   Las Vegas

 

 

WHEN:  Second Wednesday of January, March, June and September at 7:30 PM to 8:30 PM.

 

2009 meetings: January 14

 

WHERE: Barbara Greenspun Women’s Care Center, 100 N. Green Valley Parkway, Ste. 330, Henderson.

 

Janelle
Lv_icsuppgrp@yahoo.com

(Lv underscore icsuppgrp)

702-616-6944

* Prefer email, thanks.

 

 

New Jersey,

   Barnegat

Hope for Healing

 

For anyone struggling with loss due to chronic pain syndromes and illnesses

 

WHEN:  Every other Wednesday from 7:00 PM to 10:00 PM. Call or email Kimberlee for meeting place and dates.

 

Kimberlee Armengol
Hope4cure@comcast.net

609-978-1026

 

New Jersey,

   New Brunswick

IC Support Group of Central New Jersey

WHERE: Health Center for Women: 3rd Floor Conference Room. CARES Building at St. Peter's University Hospital, 254 Easton Avenue, New Brunswick, NJ
 
DIRECTIONS: Park in the
CARES building lot. Fee is $3.00. Take elevator to 3rd floor.

Michelle Brill, Group Director
Brillo4@aol.com

732-390-0422
 

 

New Jersey

   Voorhees

South Jersey IC Support Group

WHEN: Saturday afternoons, 1:00 PM to 3:00 PM.  Meetings in 2009: January 10, March 14, May 9, July 11, September 12, and November 14.


WHERE: Virtua West Jersey Hospital, Voorhees

 

DIRECTIONS: Evesham Road at Carnie Boulevard. John Young room (downstairs, next to the cafeteria).
 
Additionally, feel free to call Linda Benecke with any questions.

 

Linda Benecke
856-667-5842

New Mexico,

   Albuquerque

New Mexico IC Patient Support Group

 

 

WHEN: Quarterly.

 

WHERE: Presbyterian Kaseman Hospital, 8300 Constitution Ave NE, Albuquerque, NM. Conference Room B.

 

DIRECTIONS: Hospital phone number 505-291-2000.

 

For more information or IC support, please contact Teresa McCoy.

 

Teresa McCoy
icnewmex@aol.com

505-463-2918
 

New York,

   Lowville

Northern New York

 

WHEN: Contact Beth for meeting details.

 

WHERE: Lewis County General Hospital in Lowville.

 

Beth Monnat
jmonnat1@twcny.rr.com

315-346-6405

 

New York,

   New Hyde Park

Interstitial Cystitis Support Group

 

WHEN: Third Meeting
Sunday, March 29, 2009
9AM-12PM

 

WHERE: The Arthur Smith Institute for Urology, conference room
450 Lakeville Road Suite M-41, New Hyde Park, NY 11040

 

Please RSVP at either DMcKay@lij.edu or MRuzimov@nshs.edu or
(516)734-8565 (leave message)

 

 

New York,

   Rochester

IC Support Group of Rochester

 

WHEN: Meets monthly. See website for dates, times, locations and contact info.

 

 

www.freewebs.com/icsgr

 

North Carolina,

   Asheville

 

Western North Carolina IC Support Group

 

WHEN: Third Saturday of each month at 3:00 pm

 

The group will not meet in November or December or in snowy weather.

 

WHERE: The Atlanta Bread Company on Merrimon Avenue in Asheville. We will meet in the far right hand corner as you enter. Our location may change at a later date.

 

Nancy Williams
captivaorbust@charter.net

828-252-5045
 

 

 

Ohio

   Cleveland

 

IC We Can Help Each Other

WHEN: Saturday, 1:00 PM to 3:00 PM.

 

2009 meeting schedule: January 17, February 21 (Valentine's Day Party, Guest Speaker: Author of IC books, Catherine M. Simone), March 21, April 18, May 16, June 20, July 18, August 15, September 19, October 17, November 21, and December 19.

Discussion of IC and Alternative Treatments with Two Very Special Guest Speakers. Catherine M. Simone - Author and Dr. Ching-Yao Shi – IC Researcher, Acupuncture, NAET, and Chinese Herbs.
The Meeting is Free but we ask that you please RSVP
Date: May 3, 2009 (Sunday)
Time: 12:00 p.m. – 2:00 p.m.
Given by: Heather Schwarz
Place: Strongsville Recreation Center
18100 Royalton Road
Strongsville, OH 44136
R.S.V.P. by E-mail: IC_HeatherSchwarz@Yahoo.com

Please Join us for a Private IC Group Session to learn more about Reflexology & Reiki. She will help us understand how they both can be beneficial to our Health & Healing. Our Offsite speaker will be Deena LaVigne.

 

Date: May 23, 2009 (Saturday)

Time: 1:00 p.m. – 3:00 p.m.
Place: River’s Edge
Mother House Wellness Center
3434 Rocky River Drive
Cleveland, OH 44111
R.S.V.P. by E-mail : IC_HeatherSchwarz@Yahoo.com

 

2010 meeting: January 16

 

WHERE: Panera Bread (Small Meeting Room) 5090 Tiedeman Rd, Brooklyn

 

DIRECTIONS: 216-362-8130

Heather M. Schwarz  

IC_HeatherSchwarz@yahoo.com

216-351-4579 (Home)

216-218-4606 (Cell)

 

Ohio

   Northfield

Northeast Ohio IC/PBS Support Network

WHEN: Quarterly. Saturdays, from 1:30 PM to 3:30 PM.

 

WHERE: Nordonia Hills Branch Library; 9458 Olde Eight Road, Northfield, Ohio 44067 in the small meeting room.

 

DIRECTIONS: This library is located centrally between Cleveland and Akron and easily accessed from major highways (Routes 8, 271, and 77).

 

Laura Santurri, Group Leader
laura@icsupport.org

330-608-1830
 

To be put on the mailing for updates and meeting locations, please contact Laura, or visit us at www.icsupport.org.

  

Ohio

   West Chester

IC Support Group of Cincinnati

WHEN: Every other month. 2009 meeting dates: January 27, March 24, May 26, July 28, September 22, and November 10.

 

WHERE: Christ the King Lutheran Church, 7393 Dimmick Rd. West Chester.

 

DIRECTIONS: Call for directions.

Jean Verbarg
jacjeaver@aol.com

513-874-3573
 

Nancy Hicks
nanwood4@aol.com

513-459-1769
 

Ohio

   Columbus

IC Support Group of Columbus

WHEN: Second Wednesday of the month from 7:00 PM to 8:30 PM. Please contact Tina prior to each meeting date to confirm the event.

 

WHERE: Meadow Park Church of God, 2425 Bethel Road, Columbus, OH, Room 149 C&F.

For more information, visit http://www.iccolumbus.org/.

 

Tina Evans
ic1cols2004@yahoo.com

614-846-1209
 

Ohio

   Lima

Interstitial cystitis support group

Contact Jackie, Cheryl or Jaime at Dr. Chung's office, 419-228-1000 or 800- 27CHUNG.

Jackie, Cheryl, or Jaime
419-228-1000


http://www.obgynphy.com/

 

Ohio

   Marion

IC support group

WHEN: Fourth Monday of every month from 6:30 PM to 8:00 PM.

 

WHERE: Marion-Smith Clinic in Marion.

 

Vickie
740-383-8093

Oklahoma

   Choctaw

IC Support Group

WHEN: Meetings are Feb 14 and 28, March 7 and 28, April, 4 and 25.

 

WHERE: Chronic pain support group is meeting at Midwest City Library.


The group is for people with IC, fibromyalgia, chronic fatigue syndrome, trigeminal neuralgia, facial pain, IBS and other painful disorders.
.

 

Brenda Finch
brenda.moore@tds.net

405-390-8624

Oklahoma

   Tulsa

Tulsa IC Support Group

WHEN: Nov. 19, 2009 5:15- 6:15 Topic “pelvic floor rehab. From a PT perspective”


Feb. 25th, 2010 5:15-6:15 “Neuromodulation as an IC treatment”


May 27th 2010 5:15-6:15 To be determined

 

WHERE: Urologic Specialists of OK, 10901 East 48th St. South.

 

Barbara Moore
Davbar4@yahoo.com

918-402-4381

Oregon

   Grants Pass

Southern Oregon Interstitial Cystitis Support Group

Can leave a message anytime. Plan on having meetings at my house the first Monday of each month. Call for address.

 

Cheryl Gross
cheryllynn40@hotmail.com
541-660-3100
541-226-2177

Oregon

   Portland

Portland Oregon Support Group

Tammy Seid, Telephone Support - PORTLAND, OREGON & outline areas of the PNW. (503) 697-2060 Oregon IC State Coordinator - Volunteer

pmccallig@Gmail.com E-Mail: - Volunteer Support Internet (retired) CURN BSN, RN, Bates, McCallig Patti
Norm Duffett - Volunteer - Telephone Support for (MEN) Portland, Oregon & outline areas. (503) 330-5662 (Cell)

Pennsylvania,

Darlington  

 

New support group starting!  Meeting place and dates to be announced shortly.

 

Darlington PA and Cranberry Township (North of Pittsburgh) as well as Beaver County, and Eastern Ohio.

mail: EMargy Goehring margy.goehring@yahoo.com  

 

Puerto Rico

 

 

Iraida Cortijo
787-642-4176

 

Rhode Island,

   Warwick

 

If you are interested in attending, please get in touch with Grace Smith at 401 738 7528 or gracemsmith@verizon.net

Grace Smith
gracemsmith@verizon.net

401-738-7528
 

South Carolina,

   Chesnee

 

Check message board for meeting dates and times:

http://health.group.yahoo.com/group/icinsc

 

Requires membership sing up. Free membership. We often have open chat and sometimes a guest speaker.

 

Mrs. Rhonda Greenway
dixiefireball32@gmail.com

864-461-2351 (12 to 5 PM)
 

Tennessee

   Nashville

 

WHEN: Tuesday evening, 6:30 PM to 8:00 PM.

 

WHERE: Contact group leader.

Becky Wilson
rebeccacwilson@yahoo.com

615-582-7335
 

 

Tennessee

   Oliver Springs

 

A new support group is forming. Please contact Pam Hughes if you are interested in attending a meeting.

Pam Hughes
hughespam@comcast.net

865-435-5363 (home)
 

 

Tennessee,

   Statewide

The Tennessee IC Support Network

For details please visit www.ictnsupport.com.

 

http://www.ictnsupport.com/

Texas

   Austin

Central Texas IC Support Group – Austin

 

All IC patients and persons seeking IC information are welcome.

 

WHEN: Second Monday of every month, from 6:30 PM to 8:00 PM.

 

WHERE: Seton Hospital on 38th Street, Austin.

 

Roy Gafford
roygafford@sbcglobal.net

512-258-5840
 

Texas

   Dallas

IC Dallas Support Group

WHEN: First Monday of every month from 7:00 PM to 9:00 PM.

 

WHERE: Baylor Richardson Medical Center at 401 W. Campbell Road, Richardson, Texas. Medical Office Building I - Conference Room #2 (first floor).

 

Beth Ann McKinney
bamckinn11@aol.com

972-964-5884
 

Texas

   North Texas

PURE HOPE
North Chapter

Meetings held bi-annually.  For more information go to www.pure-hope.org.

Tina Dodd
tdodd@pure-hope.org

281-353-8078
 

Texas

   Houston

PURE HOPE
Medical Center
Chapter

Meetings held bi-annually.  For more information go to www.pure-hope.org.

Jennifer Ward
jward@pure-hope.org
281-489-0602
 
Novetta Tudor
ntudor@pure-hope.org

713-636-2401
 

Texas,  

   San Antonio

Bi-annual IC education and support meetings

Group sponsor:  Urology San Antonio

WHEN: Meeting held at least once every six months from 6:30 PM to 7:30 PM. See Urology San Antonio website for specific dates.

 

WHERE: 7718 Louis Pasteur Court, San Antonio.

 

Urology San Antonio

Community Education and Outreach Coordinator

210-582-5604

Texas,  

   Lubbock

IC Lubbock
Lubbock Texas

Please contact us for meeting info.

Wendy Cowan
iclubbock@yahoo.com

806-778-6795
 

Vermont,  

   Statewide

IC Support Group of Vermont

Please phone or email for more information or support.

Susie Turnau
802-253-1887
js@stowevt.net

 

Vermont

   Nashua, NH

Group for people suffering from bladder diseases

Contact Cecilia for more information.

Cecilia Svendbye
603-882-2295
Lakambini19@yahoo.com

 

Virginia,  

   DC metro area

Baltimore/Washington DC IC Support Group

WHEN: Quarterly.

 

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

 

Tina Nachodsky
Tina@BaltoDCicSupport.com 

 

P.O. Box 285
Bel
Air, MD 21014

Virginia,  

   Portsmouth

Hampton Roads IC Patient Support Group
Portsmouth

WHEN: Tuesdays at 6:00 PM

 

WHERE: Conference Room C (second floor) at the Bon Secours Maryview Medical Center (3636 High Street, Portsmouth.

TJ Blount, Maryview Medical Center Physician Liaison
tj_blount@bshsi.com
757-398-2689
 
Cortney Wade
Cwade1@ibius.jnj.com

937-321-1203
 

Virginia,  

   Winchester

IC - Winchester

WHEN: First Monday of every month.

 

WHERE: Winchester Medical Center - Medical Office Building 1 entrance then take elevator to Mall Level to Conference Room 1. Meetings held right around the corner from the subway.

 

Kimberly Strawderman
snaggletooth@gmail.com

540-539-3861
 

Washington

   Bremerton

 

WHEN: Third Saturday of every month from 11:00 AM to 12:30 PM.

 

WHER: Main floor auditorium of the Harrison Hospital, 2520 Cherry Avenue, Bremerton, WA

 

DIRECTIONS: Go in the main entrance and directly to the left to auditorium.

 

Jeannine Lewis
jmnidart@oz.net

360-698-1090
 

Washington

   Federal Way

Federal Way IC Support Group

WHEN: Contact Angela.

 

WHERE: St. Francis Hospital

Angela
avance@nventure.com

253-925-0368

 

Washington

   Yakima

Yakima IC Support Group

Contact Sherry for information and support.

Sherry
rweddle9771@msn.com

509-965-9771 or 509-961-8619
 

Washington

   South West

Oregon Support Group

Please contact us for meeting info.  Also call for telephone support.

Barb Wills, Internet Support - Volunteer - E-Mail: garybarbwills@aol.com *First Choice

 

Telephone Support (If needed) (360) 573-6518*Second Choice

 

*Will cover VANCOUVER, WASHINGTON, and outline areas if needed. (WASHINGTON STATE) 
 

Washington,

   Wenatchee

IC Valley Gals

WHEN: Meeting dates vary, at least once per quarter. Local Physician normally attends.

 

WHERE: Meet at Central Washington Hospital, Conference Room A, adjacent to the cafeteria.

 

Lisa de Vera
ldevera@nwi.net

509-663-6755 or

Cell: 509-860-7466
 

West Virginia,

   Morgantown

WV IC Support Group

WHEN: Call for meeting dates and times.

 

WHERE: West Virginia University's Physician Office Center, Conference Rooms 4C & 4D.

 

Christina J. Werdebaugh
cjes2000@hotmail.com

304-594-3949 or 304-692-9199
 

Wisconsin

   Statewide

 

WHEN: Please email for dates, times and locations.

 

WHERE: Meets in different places to make things easier on those that can't travel well.

http://health.groups.yahoo.com/group/ICinWI

 

Katrina
carmelann@charter.net

http://icandme.9.forumer.com

 

Revised September 28, 2009