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List of International Meetings
 

Below is a list of patient support groups for people with interstitial cystitis, painful bladder syndrome, and chronic pelvic pain.

For additional international help, please also see the list of international IC organizations and ask these groups about support group meetings around the world. Plus, see the list of doctors and healthcare providers in various countries around the world who treat IC.

 

COUNTRY

    

GROUP

MEETING SCHEDULE & LOCATION

CONTACT

Africa,

   Kenya

East Africa IC Support Group Nakuru Chapter

WHEN: Last Saturday of every month from 3:00 PM to 5:00 PM. Call to confirm meeting times and dates.

 

WHERE: Mereca Hotel Nakuru Kenyatta Avenue.

Also offer phone support for interested parties from patients to nurses, doctors, pharmaceutical companies and others.

 

James G. Mwangi
jgmwangi2003@yahoo.com

245720391104

Argentina

ARACI Asociación Rosarina Afectados Cistitis Intersticial

Contact for support group meeting details.

Liliana Bacchi

President              menadel_dan@hotmail.com

0341-4644164


Dorrego 3857-DTO.1
2000 Rosario, Argentina

 

Australia

I.C Friends of Australia

A new Australian interstitial cystitis community forum has now been created to discuss life with I.C and other related topics. The web address is ---- http://icfriends.forumotion.com

 

 


 

Australia

Interstitial Cystitis Support Group of Australia

Contact Katya Buc.

 

Please include your name and address. You may subscribe to receive the newsletter, which is published 3 times year at a cost of AU$7.00 per year.

 

Katya Buc

PO Box 144 , Richmond, VIC 3121
Australia

Austria

ICA Österreich e.V

 www.ica-austria.at

 

 

elke.hufnagl@ica-austria.at

 

Christa Rammerstorfer, Chairwoman

ica.at-rammerstorfer@gmx.at

Phone / Fax :  0043-7246-8448

 

Bolivia

La Paz IC Support Group

Contact Maria.

Maria Eulalia Anker
eulalia@ceibo.entelnet.bo
5912-2712761

 

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB) 

 

www.icpb.be

Josée DE RAA, president

info@icpb.be

 

Canada

   Alberta

 

Available for phone support.

 

 

 

Mz Edna Gabrielle
780-572-2233

Canada

   Ontario

Ottawa IC Support Group

 

Meetings for people with IC, as well as anyone interested in learning more about IC.

WHEN: Next meeting is June 17 at 7 pm

 

WHERE: Terrace Room at City View United Church, 6 Epworth Ave.

 

DIRECTIONS: Follow Merivale Rd. south from Baseline Rd. Turn right onto Rossland, opposite Emerald Plaza. There’s a gas station at that corner, proceed to Pender which is on the left, and becomes Epworth. Look for City View United Church. Go left into the parking lot. Use the central door to the church. Parking is free.

Sept. 9: Painful Bladder Syndrome/Interstitial Cystitis Support Group. Caroline Allen, physiotherapist, who specializes in pelvic pain will be our guest speaker. City View United Church, 6 Epworth Ave. Wednesday, 7 p.m. Public is welcome; free parking. Please contact Inga Legere at 613-839-6188 for further information.

 

Inga Legere
613-839-6188

Anne Raina
613-733-5891

Canada

   Ontario

Kitchener-Waterloo Interstitial Cystitis Support

 

 

WHEN: Visit online:

http://www.skatecrooked.com/kwics/

 

WHERE: Basement of the Pioneer Park Church of God (11 Old Carriage Drive, Kitchener).

 

Ann

kwicsmail@gmail.com
519-896-1778


Kathy
calvert89@rogers.com

519-570-9045

 

Canada

   Québec

Association de la cystite interstitielle (CI) du Québec

 

Visit online at www.cystiteinterstitielle.org

Françoise Robert
Présidente
frobert@videotron.ca

 

Czech Republic

 

www.uroklinika.cz

Libor Zamecnik, MD, PhD

libor.zamecnik@lf1.cuni.cz

Urologicka klinika  VFN a 1. LF UK
Ke Karlovu 6
128 08 Praha 2
Czech Republic

Denmark

 

 

Steinunn Joergensen
Project Nurse
Department of Urology

stjr@herlevhosp.kbhamt.dk


Herlev Hospital , University of Copenhagen
DK-2730 Herlev, Denmark

 

England

Patient Advocate

Provides phone and email support, IC information, and healthcare provider referrals.

 

Iliana C. Brockman
Iliana@icrelief.com

 

France,

   Paris

Association française de la cystite interstitelle

For information, please email

 

http://orphanet.infobiogen.fr/associations/AFCI

 

See also "AFCI - Présentation"

Françoise Watel
ci_france@hotmail.com

 

AFCI
82 rue Albert
75013 Paris
France

 

Mexico

Asociacion de Cistitis Intersticial Mexico

 

 

www.aci-mexico.com

Florentina Ferreyra Lopez

flore@aci-mexico.com

52(55)54-04-89-16

Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico
CP 52978

 

 

 Revised June 18, 2009